Again I come to you asking for prayer. Again, I am sure
that many will echo the sentiments of others and
ask "why can't they figure this out?"
Again, I have prayed for and expected to get
a phone call with all great news from Elizabeth's
doctor. Again, my stomach dropped this afternoon
when I heard Dr. Lee's tone as she started to talk.
Again, it feels like Liz needs to catch a break.
This morning I called the GI nurse to ask for
Liz's lab results from Tuesday. It was odd that she
would not give them to me and especially strange that
when I asked her to just fax the rests to the Pediatrician,
the nurse said "Dr. T will get those to her Ped. after he
talks to you tomorrow."
Well, that doesn't work for me!
I called Liz's Pediatrician and that lion
of a woman didn't accept waiting until tomorrow either
so she looked up the labs herself and then
called me.
"I know why the GI nurse didn't want you to
know the results until Dr. T was back on the office
(to see them)"
Liz's Prealbumin-a critical protein indicator used
to assess health and nutrition- is the lowest it has
ever been. So, so very upsetting. Her
Prealbumin number, along with her weight, is
why she was hospitalized for three weeks in
March and diagnosed with severe failure to thrive.
Given the fact that she lost 2 pounds last week and
now her Prealbumin is so low, it feels like
we are moving backwards. Again.
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