Update!

I thought we would be home by now. Goodness, I didn't think we'd be here in the first place. I am exhausted and have repeated this update 10 times already, so this will be short. I wanted to post an update though because SO many of you have been so faithful in prayer, supportive and caring. Thank you for that, truly!
Liz still has tummy pain, especially on her left side. Since last night she's also developed back pain on the left side. She was off Morphine, then of the Tylenol with Codeine, but today went back on that. Her CAT scan shows that her organs look good! That is great! It does show, though, an excess of fluid collected in her pelvis. There could be a couple things causing this and they are testing to figure that out now. What they do know is that she has infection. Her urine shows a bacteria that isn't usually seen, she's started in antibiotics for that and they are already retesting her urine. GI is trying to figure out if her stomach pain is being caused by something else or by the bladder infection (her pain is not where is "should be for that, it is higher). She's also being tested for Cdiff. She has had it in the past after being on an antibiotic or having surgery. They are also testing her stool for other things. Today felt like taking a few steps back as her pain increased and her appetite decreased. She's still on the iv. Her pediatricians, GI and Hem/Onc are all caring for her.
The dietitians also tried to start her on a nutrition supplement, but it is disgusting and she refuses to drink it. That is something we'll have to figure out, as most of the good tasting supplements have too much sugar in them for her to tolerate given her Dumping Syndrome.
So, we're waiting for tests and watching her pain. Oh, and I have decided I cannot live on a deserted island, alone, with Elizabeth Claire! Actually, I could, but we'd definitely need separate huts!
We appreciate all of you who love her so much!