Update

Quick update: Elizabeth continues to have stomach pain, nausea and bleeding with her stools. Her GI doc is on vacation this week, so the Infectious Diseases doctor is calling the shots. He is not as worried about the continued bleeding as GI is. He says it is to be expected given how bad her infection and Colitis is. I say...it is not normal to expect to see blood. Still, as long as it isn't getting worse, he says we must watch her, but not worry too much. Mmmmkay. She looks awful and has been so, so tired. I took her in for counts yesterday and her pediatrician seemed excited to say that Liz's heartrate was not too fast. I didn't know that was even an issue, but maybe given how she looked, she was exepecting it. Anyway, she had blood drawn to check her counts and wonderfully, they actually look pretty good which is huge! I worried she was anemic or her plateltes were low, given how she appears, but they were not. Great news!
We have been staying home for the past week, as Liz needs to be close to a bathroom and she is tired. Kaitlin and Jackson have been amazing! They are patient and have been having fun just playing at home. Elizabeth is both tired and irritated at this point. She has started to snap at everyone and is becoming angry and mean towards me. Poor thing. I am back to trying to manage letting her voice her anger and agitation while still keeping her from being disrespectful and rude. It is a hard balancing act. She has been sick with this since April (forget the last year and a half of the other stuff or the last 10 of her stomach issues) and that is too long to feel ill. I would be tired and angry, too.

So, we are checking in with the doctors daily and waiting and praying that the antibiotic finally works. Her Infectious Diseases doc did tell me yesterday that once she finishes this 21 day course of Vanco. she is on now, he will add another 2 weeks of treatment and taper her off of the medication, hoping this will finally cure her CDiff. She'll also start another drug next week in addition to the Vanco, to be taken for 30 days. We are praying that in addition to the Cdifficile finally being cured, she will not develop VRE, a drug resistant infection (a Super Bug), ironically cause by being on an antibiotic. Noone wants her to be on the Vancomycin for so long because of the risk for VRE but the Infectious Diseases team feels there is no choice at this point. It makes me so nervous because she's now been on Vanco for a combined 30 days, with another 24 days to go.

She'll get through this, I know. I worry, but I know she will. I have noticed though that she has started telling people, when asked, that she "kinda feels better" instead of "better!" as she usually does. Keep praying!