Life is wonderful and difficult... and I am grateful!

Saturday, September 17, 2011

Oh, Cananda

O Candida, la la la la la laa. My witty comment now has the Canadian anthem (which our kids know as well as our own National Anthem from all the times they've watched Trav's games on tv) stuck in my head. No, not Canada...CanDida. Think yeast, thrush if it's in your mouth. Liz has it in her esophagus. On camera, and the pictures we have to add to her scope photo album, it looks like bits of cotton candy throughout her esophagus. Poor baby girl has stuff going on all throughout her gastro tract and tummy. The doctor says this is just another thing from her weakened immune system mixed, with all the bacteria she has staging war on her gut, and the antibiotics she's been on for six months straight. We don't want it to spread. She started on liquid Nystatin today, which is not a pleasant thing for anyone to swallow and taste. Another mind-over-matter task for her to endure as she must not drink or eat for an hour after swallowing the medication so that the Nystatin coats the Candida. She just can't get a break from all of this.

Her doctor called this morning to check on her and I was happy to report that after a rough night, she is doing better today as far as post-procedure pain and bleeding. Her poor bum is super, super sore and her throat hurts from the tubes and scope, but she hasn't had anything other than Tylenol for pain today, which is a positive.
Now we wait for biopsy results....




Today was a pajama day. The kids watched movies, made playdough animals, colored, played Sorry (long enough for them to end up in a fight, of course) ate candy as a pre-meal appetizer...and folded laundry. Liz told me she felt too tired to fold laundry, to which I replied it is a good thing a person can sit while folding laundry!




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