A blog written as I journal my way through the ups and downs, the fair and unfair, the joys and disappointments.... all while remembering how very grateful I am.
Life is wonderful and difficult... and I am grateful!
Thursday, March 29, 2012
Update
Liz did well in the OR and we got home around 5:00pm.
For some reason, her BMA and biopsy site is higher on her back than normal and
in the middle rather than right over a hip as she's had before. Being in the middle
made it difficult for her to get comfortable and she has had much more pain than she
had with her other marrow aspirations. I finally called the pediatrician last night and
asked if I could give her codeine.
The poor kid is kind of a mess of holes. Both arms from the PICC, her back from the bone
marrow procedures, and even the simple IV bandage.... which is nothing really, but the fact that she had
To have an IV threw her over the edge of tolerance yesterday. When you have a PICC, medications
and blood draws are done through it, so you don't need to get poked and have IV's. But because
her new PICC line is threaded through the same major vein that her old line was in, she had to have an IV placed yesterday so that her old PICC could be pulled. Confusing? In short, she was super angry and felt lied to
when the team told her she'd need an IV for yesterday's
OR trip. Liz is just such a hard stick and starting a line is not easy due to her veins. Luckily, nurse Shannon was
on and somehow she always gets Liz on the first or second try.
Anyway, it was a long night of pain for our brave,
brave girl and now it will be a long, long four days of waiting for us
to find out the results of the biopsy and what her marrow looks like.
Waiting is so difficult and though I know what's done is done, and worrying won't
change what we will hear, wondering is something I cannot control.
Please continue to pray for our Elizabeth.
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