Update

This is Elizabeth's new toy. At least, I wish she would think of it that way because maybe then she would not fight me every time she has to use it....which is three times a day. Indefinitely. That's a whole lot of fighting.
Advances in medicine really is an amazing thing and this little nasal nebulizer is pretty cool. It is used for inhaled antibiotics- a form of medicating that isn't common, but is starting to be used a bit more. An antibiotic's molecules are broken down and made into a liquid that is put into a chamber and then mists out. Exactly like an nebulizer that is used for breathing treatments, except this one is used to inhale the mist (medication) through the nose. It is being used for Liz to prevent her from getting sinus infections. Remember, she is on the cycle of being immune compromised, getting infections, needing antibiotics to get rid of the infection, and the antibiotics causing the CDifficile to rage. using inhaled antibiotics will help keep her from getting the sinus infections that she is prone to getting every stinkin' time she has a cold or viral thing going on....which is constantly these days.
She says the process burns her nose and is painful, so that is why she fights the treatments. She has no choice, though.

We have the results of the labs done Monday, and I am relieved to report that her liver panel looks much better! Such great news.
Sadly, frustratingly, and cause for great worry, though, is the fact that her other counts look worse. Her Prealbumin is much lower and this is making her doctors very concerned. The fact that this number is even lower and that she has lost more weight makes the doctors think we need to intercede. In her GI's words- her counts and weight are concerning enough on their own, but given that she is so fragile and susceptible to infection, we don't want her getting so far behind that her body would be too tired to fight an infection. Last night when he called me, the GI said if she didn't show drastic change in the next 12-24hours, she would be admitted to have an NG tube (goes in the nose, down the throat and into the stomach) for feeds. I don't know what drastic change we could see other than her greatly increasing her intake, which she just isn't doing. I don't want to go to the hospital, I don't want another admit, and I don't want to start the cycle of using the NG for feeding. But, we may not have a choice. Other than the obvious concern over her weight, her body is showing even through her blood counts that she is malnourished and it is taking a toll.
My plan is to wait until tonight and talk to the doctor and ask if we can go in tomorrow afternoon. Katilin really wants us all at her tournament tomorrow (Walter is finally off on a weekend as he begins vacation tomorrow) and I need to help her get organized with a school project due next week. One day isn't going to make a difference.
I've told Liz we may have to go to the hospital, but life goes on and in fact, she is cleaning her room right now and working on homework. She absolutely does not know about the tube, as she would freak out (wouldn't you?!) and there is no way I would be able to get her in the car let alone into the hospital.

So that's where we are at....will update later.