Prayer Request

I cried last night as soon as Walter walked in the door from work. I wasn't going to, but then he asked me why I was quiet and the tears started. I cried today in front of the pediatrician. I could cry now. Blah!
This week my calendar was unusually clear; NO scheduled appointments for Liz. So exciting...and so screwed up now that today we made an unscheduled visit to the pediatrician and we are waiting to see if we'll have to head to the ER for her to get some iv fluids.
For the past two days Liz has been super pale. She has been pale for months, but some days she is scary-pale, and the last two have been two of her worst days. Last night she had quite a bit of blood in her stool and today her gums bled. Her eyes are blood-shot and her lips are so cracked. I decided to take her in rather than wait for the appointments she has scheduled for next week.
Her pediatrician says that just by looking at her and knowing how many times she isn't peeing, we know she is dehydrated (for the record...DUH!), but she also showed me that labs from Friday, when I told the Infusion Center nurses I thought she was dehydrated, showed that she was indeed super dehydrated. So, Liz has until this evening to show us she can drink...or we'll go to the ER for fluids. Let's just say I am planning on that happening because she has had only 10 oz today and her stomach is sick, so I don't see her being able to drink much more.
Her poor little bum is so painful for her as her she has a few fishers- the cause of some of the blood and most of the pain.

As soon as I got home from the doctor's office, the doctor called to tell me she had just received a fax report from the CHLA specialist we saw last week. We have some big decisions to make regarding Liz's care. She'll soon have some more specialized white count testing, a bone age study, and she will begin taking long-term inhaled antibiotics in an attempt to keep her from developing further sinus and respiratory infections.

Today the nurse said "Mom, you look tired and frustrated today."
Well that's the understatement of the decade. If you know me, you know that though I have a horrible poker face, I go out of my way to minimize how tired, upset, or over-it I may be. That is getting more and more difficult to do.

Praying our girl can get to drinking and we can avoid more trips to the ER for hydration.